In many books, you’ll have a preface which usually consists of introductory remarks by the author of the book. Most of the time the preface is written after the book is finished. After all, it serves as a way of setting the reader up on the purpose of the book with a high-level overview on what to expect. So, yeah, expectations. That’s what the preface is about, which works great when you know what you’ve written and know what to expect.
Here’s the thing…I haven’t written the book yet. So, in this case, this is sort of a preface to the preface of what I hope will be a book called Beating Crohn’s. This blog will be what drives the content of said book. Instead of setting expectations on what has already been written, I’m setting up expectations on what will be written. Big difference there.
What you’ll be experiencing is the process of writing a book about my experiences with Crohn’s disease. My goal is to write regularly, on a weekly basis if possible, and write about one topic, one experience with each blog post. My hope is that in sharing these experiences and what I have done to improve my health, I’ll inspire others to do the same.
Let me be clear though, this isn’t just for people with Crohn’s disease. I was originally diagnosed with Ulcerative Colitis. It wasn’t until just last year (2017) that my diagnosis was recategorized as Crohn’s. I’ve had this disease for nearly 10 years now and in that time I have learned that most forms of IBD (inflammatory bowel disease) share many common traits with other autoimmune diseases like multiple sclerosis, type 1 diabetes, rheumatoid arthritis, psoriasis, and others. Many autoimmune diseases have some commonality and overlap in terms of how to treat them.
I can’t say that what I have done to improve my health will help you. However, I can say this:
Your lifestyle will need to change!
I can not emphasize that enough. If you think you can just take a drug and keep on going with the same lifestyle you had prior to being diagnosed, think again. With no change in lifestyle, it’s almost a guarantee that the symptoms of your disease will impact your entire life in one way or another. Drugs can help with the symptoms but, in my experience, it’s not a cure. And drugs don’t always help with flare-ups and other symptoms all the time. Unless you change how you live, your disease will continue to run your life. Here’s the thing though…it doesn’t have to.
I’ll share with you my diagnosis, how it impacted my life, and what my life has been like while living with this disease for the past 10 years. After that, I’ll share what I have done to improve my health by changing how I live my life. I’m going to be honest with you, it was hard…REALLY hard. It continues to be hard. None of the things I do are easy. It requires patience, determination, perseverance, strength, will, and more, all of which I struggle with each and every day.
And, more than anything, it takes time. On average, at least an hour and a half of my day is spent on health related activities. I do my best to make it a natural part of my lifestyle and a daily habit. Be prepared for the time needed to invest in your health.
As I’m writing each post, my hope is that others will comment and share their experiences. Doing so will help me shape the book into something that will do a better job in helping others through their experiences. If there are questions I’m not answering, please let me know. Make comments, share a post, write an article, post things on social media. Let others know about my blog so that they can also contribute to the book. While my experiences are the primary focus, I want you, the reader, to be a part of it too.
Let’s begin the journey.